I am reflecting back on the journey my family and I have taken over the course of the year. My youngest son spent almost every holiday between October thru February in the hospital. I helplessly stood by and watched my son lose the ability to walk. He was suffering from an internal bleed that occurred right in the knee joint. As the bleed progressed he lost mobility in his right leg. He could not extend his leg fully and the bleeding continued for almost four months.
Hemophilia has reared its ugly head in our family many more times than I care to admit. At times living with the effects of a bleeding disorder takes a toll on one’s psyche. For me as the caregiver it is sometimes overwhelming. I can’t imagine how my son must feel.
Last week my stinky boy and I went to the ice rink near my home. He wanted to go with me to see me skate. I enjoyed seeing him sit in the stands. This was a part of my life that I had not shared with him. The ice actually is my solitude.
As I was leaving the ice my son said to me, “Daddy, I wish I could skate.” It never occurred to me that he would want to join me. I quickly grabbled around for the right words to say to him. I said, “Son, I will teach you how to skate.” As I listened to the words come out of my mouth I realized that all I have to offer my amazing boy are words of assurance. Sometimes a quick message of hope is all that we can bring to the table in the toughest of times. These mighty words filled with confidence and a promise that things will not stay the same.
I give thanks today that we are at a new point in our treatment. Knock on wood, my son has not had a bleed since February. With the help of a good physical therapist he is beginning to walk again. It is our hope that he will not depend on a wheelchair in the very near future. We will look back on this season of struggle and give thanks for the lessons that we have learned through these difficult times.
I will teach him to skate. I will also teach him many other things reserved for dads and sons. I will continue to be his biggest cheerleader; his biggest advocate. I will…